2 PANS kids fighting lyme and coinfections, our journey to healing

Supplements

I can’t say any or all of these have helped, but this is a list what we have used over the course of the past 6 years. We still use many of these supplements. All the links are for informational purposes only. We use specific brands that may not be listed here but these are good starting points to research the advantages and disadvantages of each product.

5-HTP –  Conditions associated with low serotonin levels allegedly helped by 5-HTP: Depression, Obesity, Carbohydrate craving, Bulimia, Insomnia, Narcolepsy, Sleep apnea, Migraine headaches, Tension headaches, Chronic daily headaches, Premenstrual syndrome, Fibromyalgia.

B12 Mehylated (injection pdf) – compounding pharmacy, not covered on insurance.

B12 Methylated spray – see above

B12 Tablets – see above

B6

Black Walnut tincture

Borage Oil – this was recommended as a topical solution to help calm our son but we again did not see any effect so we no longer use it.

Calcium – as our son gets no dairy I use a calcium/magnesium supplement. We personally like this one but you can find many different options for these supplements solo or together.

CALM-PRT

Choline Supposed to be a calming supplement. Does not seem to be as effective for us as the Inositol.

DHA

Fish Oil – Interestingly this doesn’t seem to sit well with our son so we use the Krill oil. Our daughter loves the strawberry children’s oil however.

Folic Acid available over-the-counter or by prescription. Our son is currently taking a B12/Folic acid tablet, but we switch around from the injectable B12 and the folic acid solo.

GABA use occasionally with limited success.

Glutathione liquid – We think this is a really positive supplement for our son. I attribute his better allergy control to using this supplement and B12. I could be totally misguided but for us it seems to work.

Glutathione transdermal

Inositol – we personally have a lot of success with Inositol. It seems to have a calming effect. We don’t use it for long stretches of time, but when we have more anxiety and aggression we tend to use this supplement.

Iodine

Iron – especially useful for his sleep and arm/leg movements, cramps. We know he needs an extra boost of iron when he gets angry, upset, twitchy while he is sleeping and is always crunching on ice. The ice is the biggest tell in our case, if he is crunching on cups of ice and I supplement his iron the turn-around is pretty fast. Better mood, better sleep.

Kavinace

Krill Oil

Lithium Orotate (not pharma) – our son did not tolerate this supplement, but I left it in as it may be useful to someone else.

Magnesium

Melatonin – for sleep/ less seems to be more we use only 1/2 tsp when necessary, and overuse is not recommended.

Nystatin (available on prescription, not a supplement but the tablet form is used for yeast/candida overgrowth the liquid form used to have lots of sugar in it so we decided that was counterproductive for us in regards to trying to remove excess yeast.)

Probiotics:
More and more we see foods appearing on the supermarket shelves boasting added bacteria strains for healthy digestion.  If you do have some indigestion, stomach upsets, digestive disorders, or are interested in adding some positive changes and helping the digestive process along, you might want to look at adding healthy bacteria to your diet.  When you mention the word bacteria and healthy in the same sentence it confuses people, but we must remember not all bacteria are detrimental to your health, and may, in fact, provide some health benefits, particularly those in the Lactobacillus and Bifidobacteria genera.  And here is where the Probiotic comes in. What are Probiotics? One widely used definition, developed by the World Health Organization and the Food and Agriculture Organization of the United Nations, is that “Probiotics are live microorganisms, which, when administered in adequate amounts, confer a health benefit on the host.” (Microorganisms are tiny living organisms—such as bacteria, viruses, and yeasts—that can be seen only under a microscope.) The live microorganisms that are similar to beneficial microorganisms found in the human gut. They are also called “friendly bacteria” or “good bacteria.” The most common strains are thought to be Lactobacillus acidophilus and Bifidobacterium bifidus.

A few common Probiotics (the word means “for life”), such as Saccharomyces boulardii, are YEASTS, which are different from bacteria.   Probiotics may combat reactions to antibiotics.  Probiotics are widely available, usually in the refrigerator section of your health food store.  Read more about childhood yeast problems.

Pycaganol another one that was recommended but our son does not tolerate but I left in because it may be of use to someone else. More than 230 scientific articles and clinical trials have confirmed Pycnogenol’s safety, absence of toxicity and clinical efficacy over the past 40 years. Today, Pycnogenol® is one of the most researched ingredients in the natural product marketplace. Published findings have demonstrated Pycnogenol’s beneficial effects in cardiovascular health, osteoarthritis, skincare, cognitive function, diabetes health, inflammation, sports nutrition, asthma and allergy relief and menstrual disorders, among others.

Samento – a discussion on the benefits of Samento.

Silver – we haven’t found it to be wonder remedy by any stretch of the imagination; however we do use it on cuts and bruises and we do use it for coughs/colds and other illnesses. The best use we have found is for an upset stomach. If I take it when I am feeling nauseous it will clear it fast; however it hasn’t really been wonderful for anything else we have found.

Taurine – we tried Taurine for our son’s sleep issues, it didn’t seem to help so we stopped it but I am aware other people use it with success so again I left it on the list.

TheaNAQ

Thieves and also Anabell’s Essential Oil 4 THIEVES 7 almost the same product and has the same effect. We use it for coughs/colds, sore joints, anti-bacterial etc.

Valrian Root – was not helpful for us, smells really bad, it comes in capsules but smells very strong still. It was hard for him to actually swallow these pills.

Vit A – we use on a regular basis.

Vit C regular use,  personally our kids will drink the effervescent raspberry or tropical drink type vitamin C.

Vit D – we use this more in the winter than in the summer. I feel that just by the amount of time they are outside in the summer negates the use of the supplement for that time.

Zinc – we have a lot of success when he is antsy and we use zinc. Often he also needs additional Vitamin B6 at the same time. We do not use this all the time, only if we see a need and then for about 2 or 3 weeks in small amounts. Warning: Too much zinc can be toxic.

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