2 PANS kids fighting lyme and coinfections, our journey to healing

Down the rabbit hole….

Some great conversations today, managed to get way more data crunching and information than the little I did at Genetic Genie the other day.  Now, now, I can see it, I can see it.  I can see where we were ALWAYS going to have a problem here.  Following on from yesterday’s post, the more I find out, the more it makes sense.  Now what to do, what to do. Well, I am waiting for someone who can help me move forwards with that, someone who has been there, who understands this stuff way more than me right now.

This is no magic wand, and this isn’t going to be straight forward, it’s certainly not as easy as taking 1 pill to fight the demons BUT this could very well, in the end, lead to a solution where the pills might just really not be necessary.

I think this has been my issue all along, NO ONE has been able to tell me why, or even what is happening to our son, all they can do is tell me is where we are going wrong, where we are failing, how we are losing the battle, they know they can numb ‘it’ away, whatever ‘it’ is, it may take many med combo’s and med changes but they can make it go away and he will function most of the time, he will blend with his peers… but is that enough, is it enough??

Today I have renewed hope, renewed vigor, I am sure we can figure out how to make a change following this path… stay tuned!

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