2 PANS kids fighting lyme and coinfections, our journey to healing

Options for IEP and 504 kids who are still failing…

Life for us is a mad scramble, every day the same but different.  Again, other parents drop their kid at the school gates and kiss them goodbye until 3 pm; whereupon they pick up their dysregulated, tired but usually happy, child.  I on the other hand drop my kid off at 8.20 and run home, jump in the shower and wait patiently for the phone to ring. Sometimes we actually make it to his allotted pick up time of 11.35 am but more than once the phone has rung around 10.30 with a “Mrs… please come and pick your son up, he is in the office blah blah blah”  It is not yet 4 weeks into the school year and we have already had an agreement for early dismissal, 2 earlier picks ups and 1 afternoon suspension. I feel for them, I really do. Because I screwed up and got frustrated with his first round of public schooling and placed him in a private school to try to minimize the impact of life (subsequently home schooling for the 4th grade), his IEP went dormant.  Fat lot of good that one was anyway. Regardless, I should have fought harder for what he needed, but instead I was ignorant and we left, tail between our legs to find some other kind of educational torture and torture we found, oh yes we did.  Now we are back on the public school treadmill, his IEP is in the works but until then he is dismissed at 11.35 am, simply as he can cope no longer than that.  My son has some pretty unique behavioral issues. Apparently he is an enigma, dismissed from more therapists and programs with no better skills than he went in, we are all feeling more than disheartened at this point. We have sought out more professional help than any other person I know, we have begged and pleaded for help. We have tried every single thing that comes around and in the meantime attempt to parent in the therapeutic model ourselves at home.  We are a crisis waiting to happen.  Our son is on the cusp, we either find something that works NOW or we resign ourselves to the fact that we are throwing us and all who come upon us, to the wolves.  Maybe he will succeed without intervention, maybe he will succeed through sheer will power, prayers and good grace, but I fear the opposite is true. He is neither a sociopath nor a psychopath, he is...

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