2 PANS kids fighting lyme and coinfections, our journey to healing

Mensah Medical. Progress Update, month 2, 3, 4, 5, 6, 7, 8 and we quit

So we have now been on the supplements for 2 months.  His regimen is 3 pills in the morning which is a compounded supplement mix including but not limited to targeted amounts for his size and weight and chemistry, then he takes 4 pills at lunch (2 mensah pills, and 1 vitamin E and 1 SAM-E),  and 6 evening pills along the same lines as the AM formula.  While this seems a lot, this is actually far less than he has taken in the past.  When he was taking Truehope, he was taking triple that amount, so overall he is actually happier on this regimen.  Month 1 was really nothing to report, but after a full second month we are beginning to notice changes.  Progress has been slow but steady and it is my understanding that this is the goal.  It has to be tackled long term not short term, as normalizing copper involves the copper releasing from his body.  This has to be done slowly as going too fast could cause more harm than good.  That’s ok, as long as we keep seeing progress, it is very exciting. Slow and steady wins the race in this it seems. I rewatched the video on their website yesterday – you can watch here MENSAH MEDICAL, and it reinforced that slower is better, it was good to hear and pay attention to the things we know are going on in his body and realize that what happened in the long term is not going to change overnight.  If you are looking for alternatives, or wondering what the options are, this is a great place to start.  Yes, it is almost 2 hours long, but the last hour is questions and answers, which is a wealth of information in itself.  If you are considering long term solutions, watching a 2 hour video searching for clues can be a great place to begin.  😀 So a quick update on Mensah.  While I truly believe this is the most pressing part of our struggle my son refuses to swallow the pills anymore.  No amount of begging, pleading, arguing, crying has made him change his mind.  It was sad, he really was making progress.  I wish there were just not so many pills to swallow.  Certainly less than Truehope but still a large amount.  The worst was the evening dose, it just kept making him throw up. I tried everything I could think of, bribery, coercion, feeding them in split doses, extra food, sweet food… nothing...

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