2 PANS kids fighting lyme and coinfections, our journey to healing

Trauma Center looking for participants in Developmental Trauma study!

PARTICIPATE IN THE DEVELOPMENTAL TRAUMA DISORDER FIELD TRIAL STUDY The Developmental Diagnosis Study is a critically important study that is being conducted to improve and expand trauma-related diagnoses for children. There are seven Field Trial sites across the country including our site in the Greater Boston area of Massachusetts. Each site will interview at least 100 children and guardians. Eligible children are ages 8 – 17. Interviews take two- to three- hours to complete, and can be conducted at the Trauma Center in Brookline, our affiliate clinic in Acton, or at another office or program as available. Participants will be compensated $50 for each child participating in the study. Participation in this study is an opportunity to transform the field and to develop appropriate diagnoses and treatment models for children who have experienced trauma. Children do not need to have mental health problems or histories of traumatic events to sign up. All children ages 8-17 are welcome. To participate or make a referral, please contact the clinical research coordinator Regina Musicaro: (617) 232-1303, x 310 or rmusicaro@jri.org. CONTACT INFORMATION FOR OTHER SITES: Western Michigan University, Kalamazoo MI Connie Black-Pond, MA, LMSW, LPC (269) 387-7065 black-pond@uchc.edu University of Pennsylvania and Drexel University, Philadelphia PA Elizabeth Nicholls, Study Coordinator (215) 571-4256 elizabethgnicholls@gmail.com Beth Israel Medical Center, New York, NY Emily Upshur, Ph.D. (212) 420-2474 eumupshur@chpnet.org Anchorage Mental Health Center, Anchorage, AK Joshua Arvidson, MSS, LCSW (907) 762-2817 jarvidson@acmhs.com DePelchin Children’s Center, Houston, TX Adrienne Tinder, Ph.D. (713) 558-3912 ATinder@depelchin.org University of Connecticut Health Center, Hartford, CT Rocio Chang, Ph.D. (860) 679-1728 CHANG@uchc.edu University of Connecticut Health Center, Hartford, CT Ms. Joan Levine, M.P.H. (860) 679-2132 LevineJ@uchc.edu Share this:Click to email this to a friend (Opens in new window)Click to print (Opens in new window)Click to share on Twitter (Opens in new window)Click to share on LinkedIn (Opens in new window)Click to share on Reddit (Opens in new window)Click to share on Pinterest (Opens in new window)Click to share on Facebook (Opens in new window)Click to share on Google+ (Opens in new window)Click to share on Tumblr (Opens in new window)Click to share on Pocket (Opens in new...

Christmas is round the corner and B is up to his ears with it!

Although truth be told he gets angry with presents. Doesn’t want them, doesn’t need them and reacts with venom when given them. More than once we have seen him receive a gift, open it, walk to the trash can, throw it out and walk away. He really does not want it. I have spent many a birthday or Christmas apologizing for this, but overall B’s reaction remains the same.  I am hoping this year we see a little difference in his desire to be spoilt because there is nothing we like to do more than Christmas! Happy Thanksgiving to all, at least there are no gifts involved with this holiday, just copious amounts of food, which thankfully he loves! Share this:Click to email this to a friend (Opens in new window)Click to print (Opens in new window)Click to share on Twitter (Opens in new window)Click to share on LinkedIn (Opens in new window)Click to share on Reddit (Opens in new window)Click to share on Pinterest (Opens in new window)Click to share on Facebook (Opens in new window)Click to share on Google+ (Opens in new window)Click to share on Tumblr (Opens in new window)Click to share on Pocket (Opens in new...

Are you Pro-Choice? Are you Really?

I speak to many people about health issues, mainly because we always show up in the statistics (so many kids with asthma, autism, ADHD etc) and we have to watch B’s diet carefully to avoid multiple different reactions. Anyway, as I talk to people the conversation will often veer off course to vaccinations. Full disclosure, both my kids have had most of their vaccinations, if I had to choose again then… well I don’t have to so it doesn’t matter what I say now. Over the course of the years I certainly noticed multiple reactions after each doctor visit. G particularly always hit a super high temperature afterwards, both would be lethargic, have red eye circles, pain in the injection sites, and after the chicken pox vaccine B didn’t utter a single sound for over a week! Disconcerting to say the least, but I always kept going thinking that I was doing what was best for our kids. When we get talking about the vaccine subject, many folks will start to get angry about the parents who choose not to vaccinate their kids. This kind of irks me I admit. It’s at this moment, sometimes, I like to play devil’s advocate and dare to ask if they agree that a woman’s body is her own to do with as she likes, that only she has the right to choose what happens to her body, including choosing whether or not to keep a baby incubating in there. So many, in fact more often than not, many, many of the folks who disagree with another parent’s choice not to vaccinate their kids, interestingly find that their own doctrine of a woman’s right to choose is unfailing. Strikes as such a dichotomy to me. It makes me wonder though how many of them would really utter these sentences if they had the whole story! “Me, well hell yes I have the right to choose to let a baby grow in my body, and if I choose to keep it, sure I would let someone in a white coat tell me to stick vaccinations in them year after year. If the government and doctor tells me my kid needs them, who am I to question their training? Of course if anything bad happens I will totally consider myself one of the unlucky ones. I also know and totally accept that I have no means of real compensation, but of course I will indeed happily spend the rest of my life (and retirement fund) caring for a...

November is National Adoption Month.

November is National Adoption Month. This is a reminder that we can all take time out to promote adoption and focus on finding children without a family a forever place to call home, a place to feel safe, feel loved, feel wanted, to create an opportunity to have pride in the family unit and to create an atmosphere of true attachment and achievement. Thinking about adoption?  There are many ways to give a child a home. Consider younger children, teenagers and/or sibling groups from foster care being welcomed into your family. Did you know there are 107,000 children and youth waiting for permanent families in the U.S. foster care system? If international adoption is more where your heart desires the state department has some great information on their page, including countries open right now. Not sure where to start, or even whether to start? Connect with other families getting ready to adopt or who have already finished the process. Adoption.com has a parenting forum and links to adoption professionals.  Finally grab a subscription to Adoptive Families Magazine to get lots of great information, whether you are just starting, in the process, or living as a forever family. Adoptive families has topics related to all ages in adoption. I am sure if you read my blog regularly you wonder if I really am an adoption advocate. Our story is difficult to read, it’s even harder to live, and unfortunately I believe from the email and correspondence I receive it can be very typical. Don’t let it discourage you though, my best advice would be, be prepared for the worst and celebrate the best. After all we go through, after all that I know, I still wouldn’t change a thing. Not because I am Mother Theresa or because I have some warped desire to carry on hurting, but because I know that if not me, then who? Why not me, why not us? The only thing I wish is that we were more prepared for the idea of trauma. I wish we had known about therapeutic parenting from day 1, but we didn’t. Now that we do, life is changing, yes we are making a difference, we are laughing more and frustrated less. If you are thinking of adopting and are reading this, you have the benefit of knowing this today! All kids who are separated from their Birth Mother are going to have some kind of trauma. I know, I know, the denial can be loud against that, but I firmly believe it’s the truth. After 9 months of living inside a person, hearing their voice (auditory sounds...

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